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IKAN User Testimonials
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The Magnitude of the IKAN Bowler®
Lift-equipped vans and power
wheelchairs enable the most physically limited
people in our society to go places, but we’re
most often spectators once we arrive. The IKAN
Bowler changes that – in a HUGE WAY.
Take me, for example. I am a
C1-2 quadriplegic who requires mechanical ventilation.
I cannot move or even feel anything below my neck
and I can’t breathe well enough on my own
to do without a ventilator – but I KAN Bowl
better than many people who are completely able-bodied.
When I’m bowling regularly, about once a
week, my average is about 160 a game, and I’ve
bowled four games over 200 (three 201s and a 202).
If and/or when bowling with the IKAN Bowler becomes
a Paralympic event, I’ll practice frequently
in hopes of qualifying to represent The United
States of America, and of course, I’d be
shooting for Gold. This is the magnitude of the
IKAN Bowler.
To even think and then actually
realize that someone as physically limited as
I am, can compete in true sporting fashion with
able-bodied people in a sanctioned sport, something
as FUN as bowling… it’s just a phenomenal,
uplifting, and empowering improvement for society.
And it’s felt by the IKAN Bowler users,
our competitors, our family and friends, the patrons
and employees in bowling alleys where we bowl,
and by people who read articles and watch news
stories about our bowling achievements. This is
the magnitude of the IKAN Bowler.
What it means to the
IKAN Bowler user…
I’ve got something I can
physically do! There’s really nothing else
I can do physically, virtually by myself, besides
drive my power wheelchair and run a computer using
voice software (which is how I’m writing
this letter). I’ve seen first-time IKAN
Bowler users cry tears of joy from the experience.
I’ve seen friends & family members who
are overcome with emotion from watching their
loved one physically do something fun –
for themselves – for the first time in years.
I’ve seen astonished looks and dropped jaws
from league bowlers who simply can’t believe
some of the impressive bowling shots we can make
(I’ve converted a 6-7-10 split four times:).
I’ve heard numerous times from able-bodied
onlookers “you bowl better than I do.”
Where else can society’s most physically
limited – physically do something better
than able-bodied people? This is the magnitude
of the IKAN Bowler.
What it means to Bowling
Centers…
We often draw crowds when we
bowl. One evening, a league had just finished
when I started bowling (practice). My caddy said
“bowl well, you’ve got a LARGE audience
watching you.” Many of them stuck around
to watch me bowl for a while. We bring caregivers,
family members and friends in, who often bowl
with us, and other patrons often stick around
to watch us bowl. Not only is it a feel-good occasion,
but people get hungry and purchase concessions!
More lanes are filled, more people sit at tables
(eat/drink) and watch – this is increased
revenue for bowling centers... this is the magnitude
of the IKAN Bowler.
There are thousands and thousands
of power wheelchair-using spectators, a group
that is excluded from participating in just about
everything. Many prefer to stay home. Getting
these people out and empowering them with an activity
that allows other people to see them in a positive
light, and to provide positive social interaction...
this is the magnitude of the IKAN Bowler!
Bill Miller
Leesburg, FL U.S.A.
IKAN Bowler User (202 High Game) Spinal
Cord Injury
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"I was always the athletic type and
took part in every sport I could fit into my schedule.
In 1993, life as I knew it ended in an instant.
While on vacation in Mexico, I dove into the ocean
and hit my face on an unexpected sandbar. The
impact broke the fifth vertebrae in my neck, and
I was told that I would be a quadriplegic for
the remainder of my life.
Time did not heal all wounds
in my case, and it actually proved to be just
the opposite. The longer I sat around, the more
I missed my ability to be physically active. I
tried different sports during my rehabilitation,
but nothing felt competitive. Arm aerobics was
just about the only thing I could manage, which
was really only movement for therapeutic purposes.
That’s great, but I wasn’t a geriatric
patient and I wanted a thrill! I was only 23 years
old, and the motor in my life’s engine was
just getting revved up!
In 2002, I once again became
an athlete and began competing in a true sport
– Bowling! Some friends of mine designed
a bowling apparatus which attaches to the front
of a wheelchair. From the moment I launched my
first ball with the Ikan Bowler®, until today,
I cannot put into words how it feels to be able
to bowl again. Not only does it allow me to bowl;
it allows me to bowl well! My high score to date
is 181!
One of the great features about
the bowler is that I can bowl against my able-bodied
husband, or my quad cohorts. If I choose to, I
can join a league and bowl anywhere in the U.S.,
and will still be required to follow the same
rules as everyone else, walking or wheeling. I
am still eligible to win tournaments and accolades,
and have no advantages or disadvantages over anyone.
The Ikan Bowler® creates an even, level playing
field.
When I became paralyzed, I never
imagined that I would be able to participate in
a sport again. The Ikan Bowler® has opened
up a new world of possibilities not only to me,
but my entire family. I recently gave birth to
a very active little boy, and I cannot wait until
he is old enough to join me on the lanes. This
is one sport that I will never have to sit back
and watch again! Have wheels – let’s
roll and bowl!"
Michelle Carston
Winter Garden, FL U.S.A. C5-Quadriplegic
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“It’s been hard finding something
my whole family can share with me. Now, we can
all enjoy bowling together. It’s a dream
come true.”
Jennifer Harman
Altamonte Springs, FL U.S.A.
IKAN User and Quad Squad Member
Recipient of a Rotary Club of the Villages
donated IKAN Bowler Spinal
Cord Injury
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"My name is Jon Musgrave, and I am a C4-5
quadriplegic. I was injured in a motorcycle accident
on April 19, 1991, when I was hit by a truck that
ran a stop sign. I was very much into sports and
competing before my accident, so it was hard for
me to have to sit by and watch other people do
things I used to take for granted. If not for
my wife and son I cannot begin to tell you where
I would be now.
I had tried bowling several
times after the accident but ended up throwing
some pricey bowlers away. They didn't really work
well, and I felt more like a pusher than a real
bowler . So when I got the IKAN Bowler® for
Christmas 2005, I was kind of apprehensive. But
the very first time I put it on in my house and
tried it out in the hallway and watched the ball
hook after it left the ramp--I knew this one was
different from all the rest. I could not wait
to go to the lanes. We went a couple of days later,
and it took me about 9 frames to get the hang
of it. I had to figure out which way to place
the ball to get the best action and how to drive
up to the line just right, but in the 10th frame
I rolled my first strike in over 15 years. My
first score was only around 70, but it felt great.
I wanted to bowl every chance I got. My scores
improved as I learned more about placement of
the ball and where to drive. I remember how happy
I was when I got a 144 and beat my able-bodied
friend. Then I heard that the high score for IKAN
Bowlers® was a 20l. I had just bowled a 203.
I was so excited. I had a high score, and I was
competing at something again. I was determined
to keep improving , and I did. I went from a 203
to a 209, a 214, and most recently a 215, in just
6 months.
I have a goal, and that is to
be the first person using the IKAN Bowler®
to roll a 300 game. Now that it is summer, my
son and I go bowling every weekday. It is great
to hear comments behind me when I am bowling like
"How does he do that" or "He's
better than I am". Who would have thought
that one thing could change a person's life so
much. I have something that I'm good at to look
forward to enjoying every day, something I can
share with my family and friends. I can tell you
this for sure, my life has not been the same since
I got my IKAN Bowler®."
Jon Musgrave
Grand Junction, CO U.S.A.
Overall IKAN Bowler Record Holder (243 High
Game)
Spinal Cord
Injury
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"I have been confined to a wheelchair for
over twenty years because of a disease called
Duchenne Muscular Dystrophy. For those of you
not familiar with the disease it gradually weakens
the skeletal and voluntary muscles, those in the
arms, legs, trunk and eventually the heart. There
are over forty different forms of Muscular Dystrophy.
I’m ventilator dependant at night and for
about five hours during the day.
In the past I’ve used those
metal ramps available in most bowling centers
but the IKAN Bowler® is far superior and much
more accurate. It puts the bowler in complete
control.
I’ve been using the IKAN
Bowler® for about two years and recently purchased
the much improved bowling system. The new bowler
is very easy to use and attaches to most wheelchairs
with little effort after the initial set-up.
I didn’t realize the magnitude
of the IKAN Bowler® until I used it for the
first time. The first time I used the IKAN Bowler®
I scored 80. The second time I scored 120 and
the fourth time I got my all time high score of
168. Being very limited in arm strength, I am
limited to what I can do. This device has the
ability to empower countless people with a variety
of physical limitations. The IKAN Bowler®
is an absolute blast, the most fun I’ve
had in a long time."
Jeff Parker
Lady Lake, FL U.S.A. Muscular
Dystrophy
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"My name is Mike Murach. I graduated from
the University of Eau Claire, Wisconsin in 1992
with a Bachelor of Science degree in Journalism.
I now live, with my wife and two dogs, in Elk
Mound, Wisconsin. For the last fourteen years
I’ve been a digital artist (www.MurGallery.com).
Twelve credits before graduating from college
my life changed dramatically. While performing
in a diving exhibition as a member of the U.S.
High Dive Team, I fell and bruised my spinal cord.
This nickel sized bruise left me with complete
C-3/4 quadriplegia (paralysis from the neck down).
After almost a year in three different hospitals,
I went back to college to finish my degree. After
I graduated I commenced to build a new life, this
time paralyzed from the neck down.
Since I was a professional athlete
before my accident, I had a difficult time adjusting
to a sedentary life after paralysis. I still felt
the need to be involved in athletics. So I tried
a few different things to feel active once again.
I coached diving for a summer, went sky diving,
mono-skiing in Colorado, boating with some college
friends, etc. I soon realized that these pursuits
still didn’t satisfy my competitive nature.
Although I had fun, I was still merely just “along
for the ride”. I wasn’t an ACTIVE
participant. It wasn’t until trying the
IKAN Bowler® that I felt ACTIVE as well as
competitive. I, my wife, and friends have bowled
about a dozen times now and we are all having
a great time. For the first time since 1990, I
feel my athletic, competitive needs being met.
"
Mike Murach
Elk Mound, WI U.S.A. Spinal
Cord Injury
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This "interview" is with Melissa Sino,
a Quad Squad member who has cerebral palsy. The
Quad Squad is a nickname for a group of Central
Florida power wheelchair users who, for various
reasons, have disabilities with varying degrees
of quadriplegia (quadriplegia broadly meaning
impairment in the ability to use one's arms and
legs). The Quad Squad generally gets together
twice a month for bowling. Each member uses an
IKAN Bowler®; the first adaptive bowling device
ever approved for league play by the United States
Bowling Congress. Friend and fellow Quad Squad
member Bill Miller, a ventilator-dependent quadriplegic
that resulted from a spinal cord injury, is asking
the questions. On a side note, Melissa recently
graduated from High School. Her parents are Leonore
and Jeff Sino.
Q.
Melissa, I understand you're traveling and away
from your computer, which would allow you to answer
these yourself, instead Mom is going to transcribe
your answers. I know giving long answers using
your communication device can be a little tedious,
so I thank you in advance for your answers (which
don't have to be real lengthy:). OK, Melissa,
as a person with cerebral palsy, what is something
you would like people to know about cerebral palsy,
or about having CP?
A.
I have Cerebral Palsy. I cannot walk or talk,
but, I'm smart. I understand everything you say
to me. I use this Pathfinder computer to communicate.
Please be patient as I navigate this device as
I compose my thoughts.
Q.
Will you (or Mom) please describe the type of
cerebral palsy you have, and how it affects you?
A.
Leonore (a.k.a. Melissa's Mom): Cerebral Palsy
(CP) runs the gamut from paraplegic to quadriplegic,
from hi-tone to low tone to mixed tone, from verbal
to non-verbal, from cognitively disabled to cognitively
able, and any combinations. For Melissa, her CP
manifests as: quadriplegic, mixed tone, non-verbal
and cognitively able. Typically, someone with
her intense physical involvement is usually also
cognitively involved (often significantly), which
is not the case for Melissa. Therefore, my challenge
is to be able to provide Melissa with as many
real-life experiences as possible, in spite of
her physical limitations. The IKAN Bowler®
is an awesome device that enables Melissa real-life
bowling experiences, both with and without people
with disabilities!
Q.
Will you please tell us about bowling with an
IKAN Bowler®, what it means to you?
A.
Melissa: I am good at bowling. It's different.
It's fun.
Q.
I know you drive your wheelchair using head controls.
The controls don't seem to let you finely adjust
your aim (very easily) as you approach the foul
line, whereas other Quad Squad bowlers, like me,
can adjust left and right a little more easily.
This means you sometimes can't get the ball where
you want it to go. Is that frustrating for you?
A.
Yes
Q.
cont: Or are you happy to bowl
anyway, even though you may not score quite as
high? (For the record, Melissa does well when
her chair is in good working condition, but sometimes
the drive controls get out of whack. Melissa has
the top IKAN Bowler® score for a person with
Cerebral Palsy, and for someone using head controls,
a high game of 120.)
A.
Melissa: Yes Leonore: Presently, the real wheelchair
challenge is that Melissa is using a very "tired"
powered wheelchair that needs a new left motor,
a new seating system and a better head array.
For example, the wheelchair keeps pulling to the
left as she drives so she has to not only aim
to bowl, but, also compensate for the pulling
to the left. Quite the challenge!!! We are in
the process of submitting for a new powered wheelchair.
The right motor has just been replaced since it
totally died, so now getting the insurance to
also replace the left one will jeopardize getting
a new wheelchair. Therefore, "we've"
been putting up with the worn out left motor.
Melissa is more than a trouper with hanging in
there trying to drive/bowl while trying to adjust
her wheelchair's pulling to the left. Once she
has a new chair, new seating system and new head
array, watch out, you guys will be getting some
competition! :-)
Q.
With regard to bowling with an IKAN Bowler®,
what would you like to say to other people with
Cerebral Palsy, who might require wheelchairs
that drive with head controls?
A.
Melissa: It's a system I'm bowling with and it's
helped me. I like it because it's neat.
Q.
Melissa, is there anything you'd like to add?
A.
I have fun when I get a strike!
Q.
Mom, is there anything you or Dad would like to
add?
A.
Leonore: we are thrilled that Melissa owns the
IKAN Bowler®. She not only is able to bowl
against other individuals with disabilities, she
is also able to go bowling with non-disabled friends
and relatives. Independence and control are critical
for her life experiences and the IKAN Bowler does
exactly that for Melissa. THANK YOU!!!
Melissa Sino
Kissimmee, FL U.S.A. Cerebral
Palsy
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"I have been involved with and using the
IKAN Bowler® since the beginning of its creation
and development. I am a C-4/5 complete quadriplegic
unable to move from the neck down. My injury level
took me out of participating in sports and forced
me to sit on the sidelines as a spectator. I had
always been active in sports so that was hard
to accept ... until the IKAN Bowler® was born!
The first time using it at a
bowling alley surrounded by able-bodied bowlers,
I was elated! I felt a new sense of belonging
and independence that I hadn't been able to feel
since the onset of my paralysis. I knew that moment
that bowling with the IKAN Bowler® had changed
my life and would definitely change many others
lives in the future!
I bowl usually atleast once a
month, sometimes more if my caregiver and personal
schedule permits. Although, there are times due
to circumstances beyond my control that I go for
many months without bowling at all. Recently I
hadn't bowled in over six months, returning to
the lanes with a personal best score of 148. Thinking
I may not bowl as well as when I am able to bowl
more frequently, I actually increased my personal
best to 149 that day. Two months later I broke
my personal best score again, this time by three
points, bringing my high score to date as of June
28, 2006 to 152. To me that is a huge accomplishment!
I am always just as elated as I was the first
time ever bowling with the IKAN Bowler® every
time I bowl with it!
This device can change the way
some disabled persons get back into sports and
the game of life. I highly recommend it!
Thank you for creating such an
AMAZING device. It has enhanced my confidence
and quality of life! It will truly enhance the
lives of many people."
Rhonda Reese
Fruitland Park, FL U.S.A. Spinal
Cord Injury
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